Education, Humility

Being a Disabled Student: A Lesson in Humility

For the past few months, I’ve been attending school and it’s filled me with self-doubt.

Normally, you have to have your IEP (Individualized Education Program) drawn up before school starts. That’s what gets you services with the Students with Disabilities office.

In the summer, I was anxious to get started on the next step, moving forward with my life and in my stroke recovery, so I pressured the appropriate people at ACCES-VR (Adult Career and Continuing Education Services-Vocational Rehabilitation) to approve to me attend school in the Fall.

The stipulation was that I have an appointment with a psychologist to test for said IEP, as soon as possible.

The IEP tests problem solving skills, reading and auditory comprehension, ability to retain information, memory (both, short and long term), any attention deficit, etc.

What I learned about myself through it (other than the obvious speech and speed deficits, and physical ailments) is that my visual memory is on point but my auditory memory is shot. For example, sometimes, I don’t remember key points to conversations or lectures. If I’m distracted, forget about it. That’s part of why, everything takes way longer to sink into my thick skull.

I went into the Fall 2015 semester knowing computer science was going to be a challenge, totally outside of my comfort zone, and without proper services in place.

I worked my ass off at school, anyway, and “failed” miserably with 0.000 in computer science.

Someone, who works at the college level, explained that the 0.0 GPA reflects that the course taken in that given semester was “failed.”

However, this “F” can be replaced if the student chooses to retake the course.

Now, I know more about what limits are, based on what’s happened within the past few months with school, as well as the results of the tests concerning the IEP.

With services in place with the Students with Disabilities office, in the future, I’ll get more time on tests (because of my slow reading, writing, and comprehension) and I’ll have option of having tests split (because of impending brain fatigue), etc.

That should help tremendously in coming endeavors.

Needless to say, this has all been very humbling.

But, now, I have a plan!

You see, computer science is a prerequisite for Web Design, which is was I’m interested in (besides tattooing, https://mariahrosesramblings.wordpress.com/2014/11/30/identity/, Identity, Nov. 30th, 2014.).

When I had my last meeting with my ACCES-VR councilor, we discussed the results of my IEP.

We decided that I don’t really need another degree (I, already, have 3; see Identity, again), but a few classes.

My plan is: In the Spring 2016 semester, I’m retaking Commercial Illustration (initially taken 10 years ago, or so) to give my brain a break and brush up on Photoshop and hone my left-handed skills (the stroke affected my dominant right side).

I’ll, then, spend the summer reviewing computer science, making sure I grasp the material, so I’m ready for to retake the class in the Fall.

With any luck, I’ll be free to take Web Design in the Spring of 2017.

For other “Students with Disabilities,” I’m sharing my experience with you because I hope you’ll see that people are willing to work with you, if you put in the effort. Communicate with the people in your corner and if you’re not sure where to start, ask a doctor, councilor, or your service coordinator. Someone’s bound to know SOMETHING.

 

“This above all: to thine own self be true.” (Polonius, http://shakespeare.mit.edu/hamlet/hamlet.1.3.html, Act 1, Scene 3 of Hamlet. William Shakespeare.)

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Art, Change, Learning

BREAK the Cypher

I spent my New Year’s Eve, going through my artwork from high school up through college; some after too. The idea was to refresh my memory as to what influenced me at different stages in life; what motivated and moved me. I wanted to ramble about art and not leave anything out. I still plan on doing that but I came across something I forgot about. Something along similar lines but not what I was looking for.

I forgot I used to use writing as an outlet. I remember, I took a creative writing class but I didn’t know I ever wrote anything relevant or that I attempted to share.

In my hoarding, I found three issues of “Galerie,” a yearly student-run publication, put out by my high school. I was on the staff for two years. I had, at least, one visual piece, as well as one piece of writing, in each issue I found.

I’d like to share a piece I passed off as “fiction” in my senior year. Bare with my eighteen-year-old self, as I’ve had 12 years to fine-tune my “voice,” grammar, vocabulary, etc.

“She looks into the mirror stares into the face of a person longing for change. She is a girl of eighteen with dark hair and blue eyes. She has a pale complexion and her lips are rosy pink. As she looks into her own eyes, she is distracted by the leaves outside the window, rustling as the wind whistles through them. They remind her of how restless she is. She has been a part of a twelve-year routine that she has wanted to end for so long. The end is so near but so far away. She covets a new beginning. She can’t wait to start over. She wants to cut ties with all those surrounding her. They are all so boring because they are all the same. She wants to be with people have goals. She wants to be with people who are like her. She’s different. She likes being different but she’s so lonely. She’ll be glad to go. She won’t cry when she does. She’ll smile. She will be sad to leave some people because even the important ones in her life right now might not feel that she is important enough to stay in touch with. She knows, however, that the people who care about her most will always be there.

“She hopes that some of those people will support her when she begins a new life for herself. She is so afraid of what the future has in store for her but she welcomes it with open arms. She will rise to any challenge that faces her and conquer it so that she may do what she wants to do and become what she wants to become. She’s not sure what she wants to do or become, but she’ll know when the time is right. What she does know is that she wants to succeed. She know that she is capable of accomplishing anything that her heart desires. She is intelligent and interested in so many things.

“Some people might not believe this, though. When she tries to speak about what she is feeling, she sounds stupid and ditzy (for lack of better words). She knows what she wants to say but struggles to get it out. Her cheeks become flushed and she stutters. When she finds the perfect words to say, she often forgets them before they escape her mouth. She fidgets and slumps. She has horrible posture. She’s not confident in herself and in order to counter her nervousness around people, she talks and talks. Actually, she babbles. She realizes she does it but she needs to feel less nervous somehow. The only way she can truly express herself, though, is on paper. The only way she can say what she wants to say without interruption is on paper. She wishes she had more time for her paper, whether it be lined or Strathmore. She wishes she had more time but she’s tired. When she thinks she can finally rest, there is something else to be done. She relishes the thought of a world where money is no object and time is on her side. If she could, she would spend all of her time utilizing that paper. She is sick of work and school and anything else that gets in the way of her and herself. She wants everything to be finished. She wants to be settled in a house with the perfect job. She wants to be in love. She wants to have time.

“In the middle of her thought she blinks and realizes that she has been staring into those blues eyes for quite some time now. She has been caught in her own gaze for what seemed like an eternity. She rubs her face with her hands and sighs. She looks her own face over a few timed and asks herself those age-old questions, “Who am I? What is going to become of me?” We’ll see.”

Again, I wrote that when I was a senior in high school. Sure, I want to pick it apart and edit it but the nature of the content would be similar. Instead, I’ll take this opportunity to man-up, because the character I was describing was, clearly, 110% ME. I was trying to express myself while attempting to be, somewhat, cryptic. Some of my favorite authors (namely Chuck Palahniuk and Tom Robbins) “taught” me to use my sense of humor and not be constrained to the “rules” in writing. I cling to them because I’ve found that, like my influences in art and music, I respond and relate the creative people who aren’t afraid to let their personalities shine through in their work.

I’m going to address each of my relevant fears and points, and turn this depressing, albeit optimistic, piece, into a lesson.

When I first wrote that passage, I was a naive, gullible virgin, who had never ventured outside of Rochester, NY with anyone except her immediate family. I’d never been in love and was completely lost and lonely.

I’ve been through a lot in my life. Some of it was my own doing. Other times, I didn’t know any better. Sometimes, it was just a matter of timing and/or placement. Whatever happened (or happens), I’ve always try to learn and grow from it; evolve.

I’m neurotic and methodical, which can be blessings or curses. I think EVERYTHING through. When I say, “I don’t care.” It’s not because I’m indecisive. It’s because I, genuinely, don’t care because the outcome won’t have that much bearing on the bigger picture.

Honestly, I’m not sure how much I want to share about my past but I will say, my stroke is the single-most difficult thing I’ve had to deal with in my entire life. However, I’m doing just fine a year later because of all I’ve experienced up to this point.

A cliche I use once in awhile is, “If I knew then what I know now . . .” Listen, I wouldn’t change a thing. It’s kind of a joke to me. It’s one of those *wink wink, nudge nudge* types of things.

I tattooed over my knees, “No regrets. No worries.” I do worry a-lot-a-bit but I’m forever trying not to. Life is a lot of trail and error. Sometimes, you get second chances. Sometimes, it’s one and done. Sometimes, people hurt you. Sometimes, you hurt others. I’m sincerely sorry for the people I’ve hurt. But, at the same time, I don’t regret getting hurt because it’s made me who I am. You have to think about each situation individually because, even if you’re experiencing deja vu, no one is exactly the same. If you don’t think things through, when you can, you’ll never grow and the results will send you around that same vicious cycle.

That’s why I’m analyzing my priorities from 12 years ago; because I want to see how I’ve grown and see what’s no longer important and what I still need to work on.

Here it goes!

I’ve always been restless. I’ve realized that I’ll always be restless. I can’t sit still for too long. I love, love, love traveling. Just a change of scenery for even a day satiates my nomadic tendencies, if only for a little while. I’ve found, if I don’t change things up a little bit, every once in awhile, I get stir-crazy.

A friend shared a quote by Robert Holden. It states, “Beware of Destination Addiction . . . a preoccupation with the idea that happiness is in the next place, the next job and with the next partner. Until you give up the idea that happiness is somewhere else, it will never be where you are.” I understand where Holden is coming but part of the reason I’m forever restless, is because I’ll never be satisfied. Another friend and I were talking the struggle with being an artist. You’re your own worst critic and mortal enemy. For artist like us, nothing we create is ever “good enough.” If we created THE perfect piece, we’d implode and there wouldn’t be anything left for us to achieve; nothing to work toward. I don’t see anything wrong with that. Yes, I need to choose goals that are reachable but I’ll never stop trying to do better; to BE better. That mindset has gotten me through my recovery so far. I’m not striving for absolute happiness. I’m trying to be content, moment to moment. Like MOST HUMANS ON THIS PLANET, I have good days and bad days. You just need to seize the days you can. If you have a bad one, dust yourself off, and try again.

“You pick your friends and you can pick your nose, but you can’t pick friends’ nose.” Well, I “pick[ed] . . . friends” who would let me “pick [their] nose[s],” as it were. But, seriously, I have so much love surrounding me . . . I’m so grateful. It’s been hard to let people go who hurt me and there’s a lot of disappointment involved in that but the feeling passes, eventually, and the love and support of those ones who stick around, fill up those voids. I still get lonely from time to time but I think it’s another part of the human condition.

I’m not afraid of the future anymore. I still maintain, “[I] will rise to any challenge that faces [me] and conquer it . . . [I want] to succeed. [I] know that [I’m] capable of accomplishing anything that [my] heart desires. [I am] intelligent and interested in so many things.” And I, once again, have so much support that it doesn’t matter if I talk slow or stammer. People wait to hear what I have to say. Also, I’m just as forgetful as I ever was, if not more-so. I’m working on using my resources and tools to make things easier, memory-wise (See “Memory Lost, Memory Found, Repeat.” mariahrosesramblings.wordpress.com).

I still get nervous but I’m working on that too but my “babbling” and “fidgeting” has become part of my awkward charm. People who don’t appreciate it . . . well, ya know.

I’m still working on time-management. I’ll probably never get it right but I’ll always keep trying.

I’ve changed my mind about “settling in a house.” I don’t EVER want to be tied down. There’s no such thing as the perfect job, although tattooing comes wicked close, for me.

As far as love goes, there are no rules and it’s painful. With romantic love, comes stress, sex, insecurity, tests of trust, etc. I’ll probably never figure out that whole mess but what I do know is that I can’t worry about that right now anyway. I have too much on my plate. I feel that in order to truly be with someone, you BOTH have to be content with yourselves.

With that, I suggest making a list of what makes you content and if you’re not one thing . . . start.

My List:

My own space

Travel

Working out

Doing research

Reading

Writing

Yoga

Decompression time

Being creative

Feeling healthy

Being around people I love, who love me back

Mariah Rose’s Ramblings: youarenotalone138@gmail.com

E-mail me if you want to comment on my “ramblings” but aren’t comfortable doing it publicly. I’d ask you not to abuse this gesture. I WILL NOT respond to inappropriate inquiries and I WILL NOT give out my phone number.

This e-mail address is meant to help people, survivors and caregivers, alike.

I’m not a medical provider. I’m not a therapist of any kind. I’m just a survivor whose willing to share.

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